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Power to the people: a wiki-governance model for biobanks

Edward S Dove*, Yann Joly and Bartha M Knoppers

Author Affiliations

Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, Quebec, H3A 0G1, Canada

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Genome Biology 2012, 13:158  doi:10.1186/gb-2012-13-5-158

Published: 29 May 2012


Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.

Biobank; collaboration; genomics; governance; networks; public participation; social media; Web 2.0